Gift time.
So here I am, basically wheelchair-bound, and spending lots of time in bed.
So where are the gifts of MS, which after all were promised?
Being wheelchair bound, a "big thing" for me to do is to just go outside. It there, I see flowers I've never seem before. I see plants like thyme, artichoke, dandelion, lettuce, all sort of amazing things that just pop up.
A friend of mine visits to be the day's "caregiver" who meanwhile seems in distress and he, needs first, simply to be heard. That is easy to do, bed-ridden even. I listen. I suggest that he "find the funny." We laugh. We talk about rock-and-roll keyboard playing, his knowledge of which is easily PhD level. He finds things to hear on YouTube. I show him Rick and Morty. He tells me that simply knowing that this show exists blows away his now pretty-grown kids--that he, Dad, knows about the existence of that show? We laugh even more.
Listen and laugh. Good for anyone, MS or not.
I hear about this new amazing MS drug. It is compared by a reputable MS Society against rebif and tysabri, which my at-the-time MD (a very science-y guy, MD or no) ranked in the "you can't be serious" list of things to avoid religiously. Me, I'm sticking to cannabis; a knowledgeable caregiver (doctorate) tells me it's neuror-protective, and as a side effect helps me to enjoy being alive. And calms the spasticity, of which I have plenty. Really plenty, thank you for asking.
My wife constantly makes "kitty mommy" nuzzling of the new cat. Her joy, and this adorable little cat's obvious joy at simply being alive here, is really wonderful. Chair and bed-ridden makes these all even more wonderful.
My world is kinda small, geographically, but living in it is wonderful, and MS has shown me many before-unseen wonders.
Life is good. Thank you, MS?
So, why not. Gratitude and joy are definitely worth living...
MS or not.
Thursday, April 13, 2017
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