Friday, July 7, 2017

Shiny moments

Simple joys... Sometimes in the past but no longer present with me here and now.

Simple joy of whisking matcha in the morning, then brewing oolong to enjoy all day. The sweetness of the air in the pre-too-damn-hot summer morning. The purr of our cat.

The simple joy of hearing my wife as one of the voices in Little Witch Academia--on Netflix, even!
She's voicing professors who aren't always the nicest, but she's quite amazing! The academy is kinda like Hogwarts, the teachers Karen voices are sort of Snape without the kindness, but damn, she's awesome!

Enjoy the joys that are presented you. Where they come from doesn't matter.

Many things are fading, is it age or MS? Who can say? But the simplicity of just grabbing and controlling my hand while I try to grab something... And of course, how much life changes when you spend 24/7 in either a wheelchair or a bed, who has time to hear about it? Although the simple joy of getting the wheelchair up the ADA ramp, or through the doors inside the house, is indeed welcome.

Haven't quite come to peace with typing things like I am now, especially with the flurry of mistypes and miscorrections and tries AGAIN to get things hyped correctly... Ain't no fun.

Well, that's what I got the strength for at the moment. Be well, and as the little witch would say, be shiny!

Thursday, June 22, 2017

Meanings of "normal"

And there we go. Page go away now. I have no idea why. let's try again. And so we try again...

And that's MS for you. Stuff you used to do goes away. For no purpose. Why? Who knows? Of as Tolkein often wrote, who can say?

Wish I had more to tell you besides "Life ain't so much fun."

Not today.

Because, today, life ain't so much fun.

It happens pretty much constantly.

Is that my new "normal?"

Who can say?

Which is, in a word, life.

And that's definitely normal. Right?

Sunday, June 18, 2017

The essence of...

Thought it was time to check in.

Hung out with a Yale '82 friend who whisked though my area. We had a delightful time! Challenges followed The Camera as various of us tried for pictures... When the pix find their way to me, I'll send 'em along.

One of two MS Issues... my pal noticed that one eye liked to wander around and point in different directions. Nothing new, alas... and the other one was "don't stay too long in the heat, idiot,' and well, you can guess the rest.

Even unacceorized like me, he agreed that the one thing that could/should be said of Yale was the single word: Stairs.


Well, this AM, I thought of a fun musical thing to do!

The number of times my eyes and fingers have been flailing, and spazzing, the number of times made and then tried to correct and maybe could but then couldn't (see above, there's a period where a comma should be in the previous sentence), when you're trying to get music right for 100 people playing in how many keys... Little errors are huge.

I'll try to poke at it. One right measure. That's a start!

Well, when you used to type 100 WPM, one measure doesn't seem like much. This is a huge part of the MS Journey, very much like the basic Life Journey. Things change, because I change. My own homework is to get out of my own way.

Thus may it befall to all of us!

Get out of your own way.

Is this not the essence of well... Life?