Wednesday, July 26, 2017

Until then

A message from a favorite show-creator/writer, from the floor at ComicCon. A good message for those of us on the MS highway. And here it goes:

Don't give up.

A very important message, for someone who has seen a lot of stuff, well, leave...

I could hammer at the litany of symptoms, all of which suck, I could speak about how hard it is to sit here and do this, which sucks, or how I didn't use to be in pain but now it's pretty much constant, which sucks, and well, I could go on white a while but whatever gets said will end in "It sucks."

See a theme?

Where are the promised gifts?

If there's one thing I know, they'll be here as soon as I notice them.

Until then, things well...

Suck.

Friday, July 7, 2017

Shiny moments

Simple joys... Sometimes in the past but no longer present with me here and now.

Simple joy of whisking matcha in the morning, then brewing oolong to enjoy all day. The sweetness of the air in the pre-too-damn-hot summer morning. The purr of our cat.

The simple joy of hearing my wife as one of the voices in Little Witch Academia--on Netflix, even!
She's voicing professors who aren't always the nicest, but she's quite amazing! The academy is kinda like Hogwarts, the teachers Karen voices are sort of Snape without the kindness, but damn, she's awesome!

Enjoy the joys that are presented you. Where they come from doesn't matter.

Many things are fading, is it age or MS? Who can say? But the simplicity of just grabbing and controlling my hand while I try to grab something... And of course, how much life changes when you spend 24/7 in either a wheelchair or a bed, who has time to hear about it? Although the simple joy of getting the wheelchair up the ADA ramp, or through the doors inside the house, is indeed welcome.

Haven't quite come to peace with typing things like I am now, especially with the flurry of mistypes and miscorrections and tries AGAIN to get things hyped correctly... Ain't no fun.

Well, that's what I got the strength for at the moment. Be well, and as the little witch would say, be shiny!

Thursday, June 22, 2017

Meanings of "normal"

And there we go. Page go away now. I have no idea why. let's try again. And so we try again...

And that's MS for you. Stuff you used to do goes away. For no purpose. Why? Who knows? Of as Tolkein often wrote, who can say?

Wish I had more to tell you besides "Life ain't so much fun."

Not today.

Because, today, life ain't so much fun.

It happens pretty much constantly.

Is that my new "normal?"

Who can say?

Which is, in a word, life.

And that's definitely normal. Right?