Tuesday, January 17, 2017

Time to give back

It has been quite a while since we've e-chatted.

I have been catching services simulcast from All Saints Church here in Pasadena, and that community is very much about sharing and support.

So here's what I have to share...

I spend most of the day in bed, snoozing and listening to cartoons, like Steven Universe, which are very much about sweetness and love.

Which works out I guess, since I wake un in the middle of the night and put more Hearts of Space on.

When it's warm enough, which it ain't often, I wheel myself into the sun and catch a few rays.

Things don't change much.

But that's MS for you. Some days good, some days bad. Just like life.


Oh well.

So... that's about it. When something worth sharing pops up, I'll definitely share it. Until then...

I'm going to bed.

Tuesday, September 20, 2016

Next time...

Haven't had much to share, recently. Dunno when I'll be able to share more, just sitting at the computer to do this is...hard. Maybe too hard, depending on the day.

I am wheelchair-bound and all but bed-bound. Bed is where I'm going back in very short order.

Basically, no music is happening at my house any more. It was fun, but it ain't happening today,

We acquired two six-month-old black kittens, and gave them Irish names. They love to play with each other. They seem to know that I love them too, but they seem to prefer me at a distance... for now.

And that's all I got today. Blessings and love to all of you!

See you next time.

Saturday, August 20, 2016

First, an apology and a correction. I am sorry that my recollection, and thus my writing on it, were incorrect. My doctor-turned-friend is going the Big Chemo route; he is definitely gonna just give up and go gentle into that good night. Quite the opposite!

Moving on... (As Steven Colbert the character used to say frequently.) First, I can't tell you enough how important it is to care for your caregiver. Wife got sent off to see a favorite artist/band, PJ Harvey. She came back glowing, and still is.

I have been introduced to an entirely new (to me) medical world. Stravinsky called the organ "the monster that never breathes," but I wonder how he would have spoken of The Hospital, which is a very interesting non-localized creature indeed. I am currently transitioning to a new GP ("internist" on the label) whom I first met during a hospitalization. I really like her, I really connect well to her. But my last guy had what my wife has called a "boutique" practice; the guy who mans the front desk gives great help, but he can only do so much. My new doc has web stuff and all this useful info about prescriptions and even more! I need blood drawn, just go down the hall! Need a podiatrist? We know where to send you, our office makes the referral and their office will call.

A whole new world! But isn't that what traveling the MS Highway inevitably leads each of us...

Things DO change. Constantly; and yet never. Or as afriend said years ago...

Why not both?