Wednesday, March 4, 2015

Close enough

Another small triumph.

Breakfast is the only meal of the day, nowadays, that I eat without difficulty. I don't run a very wide gamut of choices, but small changes make things interesting--today we put that on the waffle, but yesterday we used that, and if they're different enough, it keeps away the monotony. There are things that I like a lot and enjoy every day, but I keep things different and that keeps things fun.

But back to the small victory: the normal breakfast is I'll have that today, in this case, cereal. Often I have a waffle, but today after the cereal, I decided.... why not also have a waffle!

Y'know, when you're in a state your doctor has called "incipient starvation," I think it's probably a good idea to eat things whenever you feel like eating them (assuming they're healthy enough for you, we do our utmost to only have healthy things in the house).

I still don't feel "hungry" as such, but just being interested...

Close enough.

Tuesday, March 3, 2015

Echoes of Yenta

Had a great session with my MD/neurologist/acupuncturist/spiritual advisor on Monday. Very much a "one-stop shop" kinda trip.

Most amazing was that I was able to get on and off the exam table, and go from sitting to lying down and lying down to sitting without any help. Given that for a couple of months I've had to be dead-lifted onto and off of the table, this was really huge.

I dunno if I'd call it an "improvement," but it was very definitely the "opposite of worsening," which by definition is namable as "improvement," but there you go.

It does not qualify me for relapsing/remitting, but I have to admit that experiencing anything besides "circling the bowl" definitely qualifies, at least a little, as "better."

You take what you get, right?

Of course, right.


Sunday, March 1, 2015

Ram Dass and tea

I sure have been bad at keeping my blogging current. So, we do what we can to do it better.

Do the best you can with what you have. MS or not, this is a good basic way to live, it seems...

The first teaching for the "way of tea," the Japanese path of Zen tea-making, is beautiful and simple:

Make the best cup of tea you can.
Not "the best cup of tea that has ever been made," just simply: the best cup of tea that YOU can make, here and now, with what you have.

This is very much a reminder to me of the ongoing gift of MS: whatever it is, dealing with the bladder catheter, transferring from whatever to the chair or the chair to whatever, typing something like these with whatever eye-muscle "cooperation" may be happening at the time, putting on a jacket so the air outside on the back veranda is tolerable, brushing my teeth using a teeth-brushing bowl that I got in the hospital because the basic "use the sink" techniques are no longer available to me... the list goes on. But it comes back to the same thing: do the best you can, today, with what you have and how you are, here and now.

Ram Dass and the tea ceremony... unrelated, yet somehow, the same.

What time is it? Now. Where are you? Here.

Just be here now.