It's definitely time to visit the "gifts" world... rather than the "barrage of symptoms, creative things not created, especially like the things that used to be so trivial to create, and a growing list of tragic losses" that seem to be the sine qua non of the life lived with MS. Rather, I think it might be better to explore the gifts that have been presented me. Yes, gifts.
Pasadena has been horribly hot, 100+ temperatures by 3PM. But this morning, it has been more like 72. And the sun is warming, not baking... at least not yet. I had a cup of tea and a superb English muffin, toasted and blueberry jam! I sat outside and smelled the air... looked at the trees and the clouds... Listened to the birds and the city... someone was doing old-school woodworking, using non-pneumatic manual hammers. And then, the power saw, coming from another direction.
In a few minutes, I sat on the veranda puffing at my vape stick. Life was very, very good. And all I needed to do was just be there, and pay attention. No side effects, beyond I dunno... inner peace?
So MS has led me to a place where I sit. And breathe. and listen. Would I like to return to the "beauty making" place? Hell yes. But all things in their own time.
But, at the moment, Thing One is to enjoy being alive.
A good place to start.
Monday, July 25, 2016
Monday, July 18, 2016
It has indeed been a while since I blogged at y'all. Things have been unchanged, things have been very changed.
Well, I have little energy... a fantastic days is one where I can take myself down the ramp into the back patio, and then take myself back up. The whole "sitting at the computer" to do stuff, not so much.
I have no television (long story) so I have no way of watching conventions "live" like I used to in the good old days of actually having a working TV. This is good news..really, what's gonna happen that's gonna actually mean something?
But MS wise, I'm basically withering.
What else? My MD/acupuncturist/neurologist/spiritual advisor is out of action... He's shot through with stage-4 cancer, doing the chemo thing, I've placed an "I love you" call, but no response no news.
I don't imagine he'll be blogging any time soon. What's there to say? "I'm stuck in chemo, it sucks."
But it has been a delightful time to simply be here now, as Ram Dass likes to say. The days are often quite sparkling before they heat up to nasty summer hot, I love hearing the birds chattering and maybe even seeing some butterflies. The wind changes every few minutes, the scent changes--sometimes you can even smell the burger place down the street doing mad with burger-izing.
So that's what I got on offer at the moment. Stay cool, stay hydrated! Happy summer!
Well, I have little energy... a fantastic days is one where I can take myself down the ramp into the back patio, and then take myself back up. The whole "sitting at the computer" to do stuff, not so much.
I have no television (long story) so I have no way of watching conventions "live" like I used to in the good old days of actually having a working TV. This is good news..really, what's gonna happen that's gonna actually mean something?
But MS wise, I'm basically withering.
What else? My MD/acupuncturist/neurologist/spiritual advisor is out of action... He's shot through with stage-4 cancer, doing the chemo thing, I've placed an "I love you" call, but no response no news.
I don't imagine he'll be blogging any time soon. What's there to say? "I'm stuck in chemo, it sucks."
But it has been a delightful time to simply be here now, as Ram Dass likes to say. The days are often quite sparkling before they heat up to nasty summer hot, I love hearing the birds chattering and maybe even seeing some butterflies. The wind changes every few minutes, the scent changes--sometimes you can even smell the burger place down the street doing mad with burger-izing.
So that's what I got on offer at the moment. Stay cool, stay hydrated! Happy summer!
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