Probably time to check and update my music web site, but this first, this first...
Not much to report, but for those of you on the MS Road, this may sound familiar. It's a sunny and sorta warm day here in Pasadena, but I may not make it past the veranda to the patio. Cats enjoy themselves, but they come in nicely when it's Feeding Time. For those of us in the Cath Club, I found some goop that's absolutely perfect for catheterizing! Which, of course, they cath people don't send me enough of and I cannot for the life of me figure out where to order it; the address on the tube is happy to take me to many pages praising the product but no info anywhere about where/how to order it.
My fabulous wife took off to the Magic Castle last night; some friends were performing; she tells me it was fantastic! The Castle is closed to me; as a 100-year-old house, it isn't even close to ADA, and "butlers" will push me around, but what with Cath Club and fatigue, going there isn't gonna happen today.
A reminder from a friend... Things change. Life is change. Deal with it...or don't, but life is change.
And oh boy, how to deal with changes... Something I'm constantly being called upon to deal with.
Tuesday, January 31, 2017
Tuesday, January 17, 2017
Time to give back
It has been quite a while since we've e-chatted.
I have been catching services simulcast from All Saints Church here in Pasadena, and that community is very much about sharing and support.
So here's what I have to share...
I spend most of the day in bed, snoozing and listening to cartoons, like Steven Universe, which are very much about sweetness and love.
Which works out I guess, since I wake un in the middle of the night and put more Hearts of Space on.
When it's warm enough, which it ain't often, I wheel myself into the sun and catch a few rays.
Things don't change much.
But that's MS for you. Some days good, some days bad. Just like life.
...
Oh well.
So... that's about it. When something worth sharing pops up, I'll definitely share it. Until then...
I'm going to bed.
I have been catching services simulcast from All Saints Church here in Pasadena, and that community is very much about sharing and support.
So here's what I have to share...
I spend most of the day in bed, snoozing and listening to cartoons, like Steven Universe, which are very much about sweetness and love.
Which works out I guess, since I wake un in the middle of the night and put more Hearts of Space on.
When it's warm enough, which it ain't often, I wheel myself into the sun and catch a few rays.
Things don't change much.
But that's MS for you. Some days good, some days bad. Just like life.
...
Oh well.
So... that's about it. When something worth sharing pops up, I'll definitely share it. Until then...
I'm going to bed.
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